Public and Government datasets

• Centers for Medicare and Medicaid (CMS)

  • Chronic Condition Warehouse (CCW) Data*

  • Surveillance, Epidemiology and End Results (SEER) tumor registry data, linked to Medicare claims

• Commercial health plan data sources e.g. MarketScan (payor claims + biometric and laboratory result data)

• Other public use databases (e.g. National Health and Nutrition Examination Survey (NHANES), National Ambulatory Medical Care Survey (NAMCS)

  • NHANES

  • NAMCS

  • BRFSS

  • Healthcare Cost and Utilization (HCUP)

EHR Data

• PCORnet:

  • The national’s largest clinical research network, 70 million patients strong and growing.

  • Common data model

• i2b2

Traditional registries

• ArthritisPower Patient Powered Research Network

Not the coding systems you are looking for? No problem.

• Drug Mapping

• ICD9-10, CPT, HCPCS, LOINC coding:

  • https://www.cms.gov/Medicare/Coding/ICD10

  • https://www.cms.gov/Medicare/Coding/ICD10/2020-ICD-10-CM

  • https://www.cms.gov/Medicare/Coding/ICD10/2020-ICD-10-PCS

  • https://www.aapc.com/resources/medical-coding/cpt.aspx

  • https://www.cms.gov/Medicare/Coding/HCPCSReleaseCodeSets/Alpha-Numeric-HCPCS

• Provider identifiers

Software Technology.

This is just some of what’s in our toolbox.

Statistical software: SAS, R, Stata, Python.

Data visualization: Tableau, RStudio Connect.

Data capture tools: Redcap, Salesforce.

Passive sensor devices: Fitbit, Apple, Garmin, Withings.